Being a SEND parent is hard. This guide covers carer assessments, respite, and finding support.
5 min read
SEND parenting is 24/7. Burnout is common and includes symptoms like exhaustion, irritability, difficulty concentrating, changes in sleep or appetite, and feeling overwhelmed or detached. These are not signs of failure — they are signs that you need support. Your GP can help, and you are entitled to a Carer's Assessment from your local authority to identify the support you need.
As a parent carer, you can ask your local authority for a parent carer needs assessment. This is separate from your child's assessment. It looks at your health, wellbeing, and whether you need support to keep caring. The LA may offer short breaks, practical help, counselling, or a personal budget.
Local authorities have a duty under the Children Act 1989 to provide short breaks for disabled children and their families. This can include after-school clubs, weekend activities, holiday play schemes, overnight respite, or home-based support. The availability varies by area, but every LA must have a short breaks statement. Ask your SEND team or look on your LA's Local Offer page for what is available.
You may be able to claim Disability Living Allowance (DLA) for your child, Carer's Allowance, and support from the Family Fund. A Blue Badge may also help if your child has mobility needs, hidden disabilities, or needs medical equipment nearby. Benefit rates change, so ask Citizens Advice, Contact, or a local welfare adviser for a current benefits check.
You are not alone. There are local and national support groups for SEND parents, both online and in person. Contact, the National Autistic Society, local parent carer forums, and community groups are good places to start. Many parents find that connecting with others who truly understand is the most valuable support of all. SENDadvisor lists community groups, creators, services, and local resources you can explore by area.
Last reviewed: 18 June 2026
